Helpful Links


GBS/CIDP Foundation International
The GBS/CIDP Foundation International is the only voluntary, nonprofit organization that provides support to patients of GBS/CIDP and their families, awards grants to researchers and offers education to the public and professional communities.

Western Neuropathy Association (WNA)
The Western Neuropathy Association (WNA) is a California non-profit, tax-exempt corporation which promotes the organization of local support groups for people with peripheral neuropathy (PN) and those who care for them. Our primary goal is to establish support groups in every population center in California, Nevada, and Oregon and possibly Hawaii.


Neuropathy Support Network
The Network for Neuropathy Support, Inc., dba Neuropathy Support Network is a Florida based 501(c)(3) nonprofit organization dedicated to actively supporting patients, care givers and families affected by ALL forms of Peripheral Neuropathy.  The founding director is Eugene B. Richardson BA, MDiv, EdM, MS (Counseling Psychology), LtCol, USA (Retired).  The Network supports the implementation of the missions of all organizations reaching out to raise awareness and hope to all neuropathy patients.  The Network holds the copyright to the DVD production of “Coping with Chronic Neuropathy” that was developed by professional volunteers, seven with neuropathy, to encourage and empower neuropathy patients world-wide.

The Foundation for Peripheral Neuropathy
The Foundation for Peripheral Neuropathy is a private foundation committed to fostering collaboration among today’s most gifted neuroscientists and physicians who are dedicated to neuropathy research and treatment to develop new and effective therapies that can reverse, reduce and on day find a cure for Peripheral Neuropathy. It is our ultimate goal to utilize every means and opportunities to dramatically improve the lives of those living with this debilitating disease.

National Institute of Neurological Disorders and Stroke
The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.

The UCSF Neuropathy Center
Coordinates education, support and outreach programs for patients suffering from peripheral neuropathy, a disease caused by damage to the peripheral nerves.

The National Institutes of Health (NIH)
Part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research. Helping to lead the way toward important medical discoveries that improve people’s health and save lives, NIH investigates ways to prevent disease as well as the causes, treatments, and even cures for common and rare diseases.
Provides regularly updated information about federally and privately supported clinical research in human volunteers. gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on should be used in conjunction with advice from health care professionals.

The National Organization for Rare Disorders (NORD)
NORD is a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

American Chronic Pain Association (ACPA)
The ACPA was founded in 1980 to provide resources for people coping with chronic pain.

The National Committee for Quality Assurance (NCQA)
The NCQA provides free access to detailed report cards on health plans, clinical performance, member satisfaction, access to care and overall quality on its Health Plan Report Cards online.

Power of Pain Foundation (POPF) 
The Power of Pain Foundation’s mission is to educate and show support for Chronic Pain Patients, specifically those with Neuropathy Pain conditions including diabetic neuropathy, lyme disease, neuro-muscular diseases, neuro-autoimmune diseases, and post cancer pain.

Patient Advocate Foundation (PAF)
The PAF seeks to assure patient access to care, maintenance of employment and financial stability.

Patient Services Incorporated (PSI)
The nonprofit PSI specializes in health insurance premium, pharmacy co-payment and co-payment waiver assistance for people with chronic illnesses.

PolyNeuro Exchange
Provides up-to-date and current information on symptoms, diagnosis, and treatment options for peripheral neuropathies. Video and audio presentations provide insights from experts in the field of inflammatory neuropathies and related sciences focusing on MMN, CIDP and GBS. Newer content to the site includes:
· Electrophysiologic Findings in Multifocal Motor Neuropathy (Jonathan S. Katz, MD)
Explore electophysiologic findings of MMN in addition to the classical electrophysiological conduction block.
· Global Multifocal Motor Neuropathy Quality of Life Patient Survey Identifies Needs in Education and Treatment (Jonathan S. Katz, MD)
Examine a quality of life patient study that identifies needs in education and treatment for patients with MMN.
· CIDP Assessment Tools: INCAT (Dr. Jeffery A. Allen)
Learn about the INCAT scores and variations of them used to evaluate outcome measures for immune-mediated neuropathies.
· CIDP Assessment Tools: Grip Strength (Dr. Jeffery A. Allen)
Listen to a discussion about tools that are commonly used to measure grip strength in CIDP.
· CIDP Assessment Tools: Rasch Overall Disability Score (Dr. Jeffery A. Allen)
Hear a brief description of the Rasch version of the Overall Disability Score used in CIDP diagnosis and treatment.
· CIDP Assessment Tools: Medical Research Council Sum Score (Dr. Jeffery A. Allen)
Understand how the Medical Research Council (MRC) Sum Score can be used for evaluating muscle strength in CIDP.
· Fatigue in CIDP (Karissa Gable, MD)
Engage in a presentation on the comparison between active and remission disease states in CIDP.